Together, we fight for access to healthcare for the bleeding disorders community. We work together to ensure and enhance the quality and accessibility of comprehensive care and services for children and adults with hemophilia and related bleeding disorders through information sharing, public education and advocacy.
Locally
Each year, the Ohio Bleeding Disorders Council hosts Ohio Statehouse Day, where people affected by a bleeding disorder get to meet their state elected officials and voice their concerns about issues important to the Ohio bleeding disorders community. The OBDC is made up of the five chapters and eight Hemophilia Treatment Centers in Ohio.
Nationally
NHF’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. In 2021, Washington Days had more than 400 volunteer advocates from 45 states that met with legislators and staff to discuss federal funding for bleeding disorder programs and support policies that increase affordability of coverage and access to care.
Thank you to all of our families who traveled to Columbus, Ohio to advocate for our bleeding disorders community! You are making a difference!
