The Greater Cincinnati/Northern Kentucky Chapter of the National Hemophilia Foundation, the Tri-State Bleeding Disorder Foundation (TSBDF), is a nonprofit organization with an over 40 -year history of providing support, programs, and services to the bleeding disorder community of Greater Cincinnati, Northern Kentucky, and Southeast Indiana.
We aspire to improve the quality of life for children and families living with bleeding disorders. The Tri-State Bleeding Disorder Foundation serves 16 counties assisting more than 500 patients and their families. The focus of support for the entire family unit is a driving force behind development and implementation of programs operated by Tri-State Bleeding Disorders Foundation.
Bleeding Disorder patients face financial issues that are unique to the bleeding disorder community. TSBDF offers Emergency Assistance for patients. Each patient’s needs are individual to their situation, but emergency assistance can include transportation, housing, medical equipment and financial assistance directly related to the patient's bleeding disorder.
For many children with bleeding disorders this camp is the only opportunity they have to socialize with others who have the same type of needs. It is also during this week that campers will have an opportunity to be taught how to treat their bleeding disorder with a self infusion. With support from onsite medical staff patients leave camp with not only fun memories, but with an education that will last them a lifetime.
Educational information and support are offered through the collaborative efforts of TSBDF and the Hemophilia Treatment Centers. This collaboration also provides newsletters through the publication of Children’s Hospital’s newsletter, Bloodline, as well as TSBDF’s newsletter, Bloodties.
This two day conference is a collaborative of TSBDF, University of Cincinnati adult Hemophilia Treatment Center, as well as the pediatric Hemophilia Treatment Center at Cincinnati Children’s Hospital Medical Center.
The Family Educational Conference is held once every two years and provides a forum for the bleeding disorder community to share their experience. The conference is designed to increase knowledge of bleeding disorders and provide instruction related to managing issues faced by family members, caregivers and patients.
TSBDF takes an active role regarding health and insurance legislation through collaboration with the Ohio Bleeding Disorder Council and the National Hemophilia Foundation. Together, we fight for access to healthcare for the bleeding disorders community. We work together to ensure and enhance the quality and accessibility of comprehensive care and services for children and adults with hemophilia and related bleeding disorders through information sharing, public education